Welcome to the GDRO website
The Genetic and Rare Disorders Organisation (GRDO) is a non governmental organisation acting as a national alliance for voluntary groups representing the views and concerns of people affected by or at risk of developing genetic or other rare disorders.
The mission of the Genetic and Rare Disorders Organisation is to provide a strong voice for voluntary groups representing people with or at risk of developing genetic or other rare disorders in order to achieve better support and services.
The Genetic and Rare Disorders Organisation acts as a watchdog in relation to legislation concerning disability to ensure that the rights of people with genetic or other rare conditions are protected.
Rare Disease Day 2012
A new promotional video for Rare Disease Day 2012, which GRDO helped co-ordinate in Dublin, features six people from Ireland, each with a different rare condition.
Latest news
11 June Consultation Day on National Rare Disease Plan, 30 April 2012 - click hereHRB hosts workshop on rare disease research in Ireland, 26 March 2012 - click here
GRDO welcomes commitment to develop clinical care programme for rare diseases, 7 March 2012 - click here
Seanad debate on rare disease, 7 March 2012 - click here
GRDO addresses Joint Oireachtas Committee, 29 February 2012 - view here
GRDO survey highlights need for National Rare Disease Office, 28 February 2012 - click here
Promotional video for Rare Disease Day 2012 launched, 13 February 2012, featuring six people with rare conditions in Ireland - click here
Please complete our survey, launched, 20 December 2011: Rare Disease in Ireland – Your Experience - click here
Rare Disesase Day 2012 website launched, 20 December 2011 - click here
Second edition of the quarterly e-newsletter published by the Rare Diseases Taskforce: 'Rare Diseases News', Jan-Mar 2012, now available - click here
GRDO Patient Organisation Survey launched, 5 December 2011 - click here
First edition of the quarterly e-newsletter published by the Rare Diseases Taskforce: 'Rare Diseases News', Oct-Dec 2011, now available - click here
GRDO appoints Information and Development Officer, 24 October 2011. More information - click here
Report on event hosted by GRDO for International Rare Disease Day, 28 February 2011 - click here
Europlan Ireland Conference 20 January 2011: information and podcasts - click here
Newsletter 2010 - click here
Newsletter 2009 - click here
Newsletter 2008 - click here