About the GRDO
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To voice and promote views of the member organisations on issues of common concern.
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To be a strong and united voice that will increase public awareness of genetic and other rare disorders.
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To promote further development of genetic services in Ireland .
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To lobby for the availability of adequate care services in Ireland .
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To promote equality of educational and employment opportunities.
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To facilitate the exchange of information between member organisations
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To represent the needs of its member organisation to the statutory and other bodies.
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To establish a liaison with geneticists and other relevant specialists nationally and internationally to help GRDO achieve its aims and objectives.
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To encourage scientific research in the area of genetics and other rare disorders
The GRDO was incorporated in 1988 and its first
achievement was to successfully lobby for a dedicated national centre
for
medical genetics which was established at Our Lady’s Hospital Crumlin
in 1994.
The objectives of the GRDO are:
Disability Federation of Ireland DFI www.disability-federation.ie
European Rare Disorders Organisation EURORDIS www.eurordis.org
European Platform for Patient Organisations, Science, and Industry, EPPOSI www.epposi.org
European Patient Forum Policy Advisory Board www.eu-patient.eu
Irish Platform for Patient Organisations, Science and Industry IPPOSI www.ipposi.ie
Medical Research Charities Group MRCG www.mrcg.ie
Gallery
Incidence of Rare and Genetic Disorders in Ireland
A rare disorder is a disorder affecting fewer than 1 in 2000 people. The European Union Committee of Experts on Rare Diseases (EUCERD) estimates that between 6% and 8% of the population are affected by rare disorders, i.e. 270,000+ people in Ireland. 80% of rare disorders are of genetic origin, with many affecting children. No cure exists for the vast majority of rare disorders.
Newsletter 2010- click here
Newsletter 2009 - click here
Newsletter 2008 - click here