Links and resources
Support Groups
22Q11 www.22q11ireland.org
Alpha 1www.alpha1.ie
Bee for Battens www.beeforbattens.org
Debra Ireland www.debraireland.org
Fighting Blindness www.fightingblindness.ie
Friedreich’s Ataxia Society Ireland www.ataxia.ie
Fragile X www.fragilex-ireland.org
Huntington’s Disease Association of Ireland www.huntingtons.ie
Irish Cancer Society www.cancer.ie
Irish Haemochromatosis Association www.haemochromatosis-ir.com
Irish Haemophilia Society www.haemophilia.ie
Irish Raynauds and Sclerodoma Society www.irishraynauds.comIrish Motor Neurone Disease Association www.imnda.ie
Lupus www.lupus.ie
Marfan Society www.marfan.ie
Muscular Dystrophy Ireland www.mdi.ie
Neurofibromatosis www.nfaireland.ie
The Cystic Fibrosis Association of Ireland www.cfireland.ie
Turner Contact Group Ireland www.tcgi.ie
Resource OrganisationsCentral Remedial Clinic (CRC) www.crc.ie
Department of Health and Children www.dohc.ie
Disability Federation of Ireland ( DFI) www.disability_federation.ie
European Organisation for Rare Diseases ( Eurordis) www.eurordis.org
Europlan Information www.europlan.ie
Genetic Interest Group (GIG) UK www.gig.org.uk
Irish Platform for Patient Organisations, Science and Industry (IPPOSI) www.ipposi.ie
Medical Research Charities Group (MRCG) www.mrcg.ieNational Organisations for Rare Disorders (NORD) USA www.raredisease.org
Gallery
National Centre for Medical Genetics
The National Centre for Medical Genetics (NCMG) was
established at Our Lady’s Hospital Crumlin in 1994. The NCMG aims to
provide a comprehensive service for all patients and families in the
Republic of Ireland affected by or at risk of a genetic disorder. The
Centre comprises three integrated units, a Clinical Genetic s service,
a Cytogenetics laboratory and a Molecular Genetics laboratory. The
Centre provides a service for both children and adults, and has clinic
facilities designed with adults as well as children in mind.
The National Centre for Medical Genetics website is: www.genetics.ie