Rare Disease Information Day
Morning Meeting
The Irish Platform for Patients' Organisations, Science and Industry
(IPPOSI), the Genetic and Rare Disorders Organisation (GRDO) and the
Medical Research Charities Group (MRCG) invite you to attend a morning
meeting on Thursday, 25th February 2009 to mark World Rare Diseases
Day. The meeting "Focus on Rare Diseases in Ireland; What is the
National Plan?" will commence at 10am.
Please click here for the agenda of the GRDO Morning Meeting.
Extraordinary
Measures
Genetic and Rare Disorders Organisation (GRDO), the Irish platform
for Patients' Organisations, Science and industry (IPPOSI) and Muscular
Dystrophy Ireland are delighted to invite you to join them in:
Movies@Dundrum at 7.45pm, Thursday,
February 25, 2010
For a special preview screening of CBS Films' Extraordinary Measures as part of
events leading up to Rare Disease Day 2010 on February 28.
Starring Harrison Ford and Brendan Fraser, the film is inspired by the
true story of John Crowley, a man who defied conventional wisdom and
great odds, and risked his family's future to pursue a cure for his
children's life threatening disease.
Please click here for
an invitation to the preview.
Gallery
Latest news
Ireland's Rare Disease Information Day will be held on 25th February
2010, click here
for information.
The International Rare Disease Day is coming up, click
here for information.
Newsletter 2009 - click here
Newsletter 2008 - click here